Lip edema mainly affects women. It is a fatty tissue disease that causes the person to increase in size, primarily on the legs, thighs and buttocks, which causes pain, fatigue and heaviness in the body. At the same time, life is changing for them and their everyday lives are limited by the disease.
Catharina Melander will conduct the study together with Malin Olsson, Assistant Professor and Päivi Juuso, Associate Professor.
– The women are going to tell about their life situation. The focus will be on how they experience pain, fatigue and feelings such as shame and guilt, but also what makes them feel good and feel well, despite illness, says Catharina Melander.
According to previous studies, women with lip edema find it difficult to be taken seriously in health care.
– The importance of the response and issues that affect norms in society around women's bodies will also be addressed, says Malin Olsson.
The study will last for a year and is part of the nursing research conducted at Luleå University of Technology with a focus on women's experiences of living with long-term illness.
– Our research aims to meet society's goals when it comes to offering dignified care in connection with long-term illness, says Päivi Juuso.