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People's experiences of living with long-term illness

The nursing research conducted in this area aims to meet society's need to offer a dignified care in connection to living with long-term illness. The focus is on people's health processes, how they can be understood and strengthened. Furthermore, it is studied how it can feel to be ill, how the person who is ill can experience their life situation, and how life conditions and important values in life are affected. Another focus is to explore opportunities for using digital resources as support for health and illness. An important starting point for this research is people's stories and experiences. The area is studied with qualitative and quantitative approaches.

Dignified life for older persons

This project aims to promote a dignified life for older persons. An additional focus is to explore opportunities for using digital solutions to support this. The goal is to study how staff can be supported to assess dignity in the daily life of elderly people with composite needs. We will also include a focus that stimulates staff to use digital resources as part of meeting the needs of the older person and maintaining a dignified life. Dignity as a concept is diffused and guidance that can be applied in everyday care is lacking. In order to support older people to live in their own homes and continue to live a life that is meaningful despite chronic diseases and complex needs, digital resources play a crucial role.

Project manager and contact: Associate professor Malin Olsson & Doctor Catharina Melander, Luleå University of Technology
Contributors: Assistant professor Lars Andersson Ersta Sköndal Bräcke University, Professor emeritus Stefan Sävenstedt, Luleå University of Technology

Women's experience of living with Lipedema

In this project, the focus is on how women who have been diagnosed with Lipedema describe their everyday lives and the challenges that are related to living with Lipedema. The project's explicit focus will be on how women experience pain, and feelings such as shame and guilt, which has proven to be common in relation to quality of life and which also affects everyday life to a great extent. A prerequisite for developing methods that support people with illness is to first study the perceived needs that people express. As far as Lipedema are concerned, personal descriptions of needs are still sparingly explored, and our intention is therefore to clarify this in a first step. The project takes place in collaboration with and support from the Svenska Ödemförbundet.

Project manager and contact: Doctor Catharina Melander Luleå University of Technology
Contributors: Assistant Professor Malin Olsson, Assistant professor Päivi Juuso

Women's experience of how everyday life is affected by Osteoporosis

This project is being carried out in collaboration with the Osteoporos Association in Norrbotten. The overall focus with this project is to describe women's experiences in connection with Osteoporosis and to highlight the importance of phenomena such as rest and recovery in everyday life. We also study how women go about when doing what is important and meaningful to them. For example, resting is significant for people to feel well-being despite illness; however, the phenomenon is still, as it is experienced by the person who is ill, sparsely studied in care research. The aim of these studies is therefore to generate knowledge about phenomena of importance for women with Osteoporosis so that their need for well-being can be supported in everyday life.

Project manager and contact: Assistant professor Carina Nilsson, Luleå University of Technology
Contributors: Associate Professor Birgitta Lindberg, Assistant Päivi Juuso, Associate professor Malin Olsson